I have now been stuck with a CPAP that doesn’t work well for me for 4 weeks. During that time, I have been fobbed off by the technical people for a few days, had my notes placed with “my” consultant’s office for two weeks, ignoring the fact he is on annual leave, and for the past week the issue has been with another consultant, who I haven’t managed to speak with once, only repeated phone calls to his secretary. This is despite my stressing several times that I am not getting quality sleep, that it has affected my social life (a week’s holiday wasted, haven’t had the energy to go out once in the last 3 weeks) and work (tired all the time, to the point that I have taken time off). All they can see is that I have been giving a “new” (it’s not), “improved” (it’s not) machine.
In the meantime while I have been waiting for a response from Papworth to my calls, I have been googling, and have discovered a UK company who can supply machines, masks and other accessories.
Today I had an appointment at Papworth hospital respiratory sleep centre. It was my annual appointment, where they check me out, and my machine, but I thought I could raise my issues and get them addressed.
As a result, I’ve done bugger all housework over the last couple of weeks, I have a huge pile of t-shirts and underwear waiting to be ironed or put away, and I’ve missed out on a couple of things I intended to do this month, such as gaming and folk events.
No, it is not a sequel to Jim Carrey’s movie, although it is almost as funny.
While I was away for the holidays, my CPAP mask split. Fortunately it happened towards the end of the holiday, and I managed to make a running repair, which got me through the last couple of days. I keep a couple spare at home, so once I got back, I was fine.
However, I’ll now use it as an opportunity to rant about the medical supplies industry in the UK.