Tag: cpap

February 23, 2012
The nonsense with Papworth Hospital unfortunately continues, emphasising to me that you can think an organisation is really great (I’ve had no complaints in 10 years), but it only takes one major foulup and a total lack of will to fix it to completely change your mind.

I have now been stuck with a CPAP that doesn’t work well for me for 4 weeks. During that time, I have been fobbed off by the technical people for a few days, had my notes placed with “my” consultant’s office for two weeks, ignoring the fact he is on annual leave, and for the past week the issue has been with another consultant, who I haven’t managed to speak with once, only repeated phone calls to his secretary. This is despite my stressing several times that I am not getting quality sleep, that it has affected my social life (a week’s holiday wasted, haven’t had the energy to go out once in the last 3 weeks) and work (tired all the time, to the point that I have taken time off). All they can see is that I have been giving a “new” (it’s not), “improved” (it’s not) machine.

February 2, 2012
An update on how things are going. The last week, I haven’t been getting on with the machine at all, to the point that for two nights I unplugged the thing and slept without CPAP at all.

In the meantime while I have been waiting for a response from Papworth to my calls, I have been googling, and have discovered a UK company who can supply machines, masks and other accessories.

January 27, 2012
A few days ago, I commented on livejournal that I had been feeling sleepy lately, and wondered if my CPAP needed adjusting.

Today I had an appointment at Papworth hospital respiratory sleep centre. It was my annual appointment, where they check me out, and my machine, but I thought I could raise my issues and get them addressed.

February 4, 2010
Over the last month, I’ve dipped in and out of being unwell – nothing alarming, merely coughs and sniffles, and a problem of being tired during the day, but unable to sleep properly at night, mainly due to said sniffles affecting my use of CPAP.

As a result, I’ve done bugger all housework over the last couple of weeks, I have a huge pile of t-shirts and underwear waiting to be ironed or put away, and I’ve missed out on a couple of things I intended to do this month, such as gaming and folk events.

January 6, 2009

No, it is not a sequel to Jim Carrey’s movie, although it is almost as funny.

While I was away for the holidays, my CPAP mask split. Fortunately it happened towards the end of the holiday, and I managed to make a running repair, which got me through the last couple of days. I keep a couple spare at home, so once I got back, I was fine.

However, I’ll now use it as an opportunity to rant about the medical supplies industry in the UK.